From Discovery to Cure - NBIA Disorders Association

The NBIA Disorders Association is your number 1 resource for education, advocacy, research news and family support for Neurodegeneration with Brain Iron Accumulation NBIA disorders.

OVERVIEW

This web site nbiadisorders.org currently has an average traffic ranking of zero (the smaller the more users). We have scanned twelve pages inside the domain nbiadisorders.org and found eighty-five websites associating themselves with nbiadisorders.org. There is one contacts and addresses for nbiadisorders.org to help you correspond with them. There is four social networking sites linked to nbiadisorders.org. This web site nbiadisorders.org has been on the internet for one thousand one hundred and fifty-three weeks, five days, two hours, and fifty-six minutes.
Pages Crawled
12
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85
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1
Locations
1
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4
Online Since
Nov 2002

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NBIADISORDERS.ORG HISTORY

This web site nbiadisorders.org was started on on November 12, 2002. It is now one thousand one hundred and fifty-three weeks, five days, two hours, and fifty-six minutes old.
REGISTERED
November
2002

LENGTH OF LIFE

22
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LINKS TO WEB SITE

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NBIA NBIAcure

Although it may be out of reach today, a cure for each of the NBIA disorders is in our sights. We care deeply about improving the lives of children and adults with NBIA. Our team at NBIAcure will provide support and information to patients, families, clinicians and researchers, initiate new research studies to lay the foundation for clinical trials, and collaborate with academic and industry partners to develop new treatments.

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CONTACTS

Hallervorden-Spatz Syndrome Association

Patricia Wood

2082 Monaco Ct

El Cajon, CA, 92019

US

NBIADISORDERS.ORG HOST

Our parsers observed that a lone page on nbiadisorders.org took four thousand two hundred and three milliseconds to stream. We identified a SSL certificate, so we consider nbiadisorders.org secure.
Load time
4.203 secs
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Internet Protocol
192.124.249.7

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I revealed that this domain is employing the Sucuri/Cloudproxy server.

PAGE TITLE

From Discovery to Cure - NBIA Disorders Association

DESCRIPTION

The NBIA Disorders Association is your number 1 resource for education, advocacy, research news and family support for Neurodegeneration with Brain Iron Accumulation NBIA disorders.

CONTENT

This web site nbiadisorders.org has the following on the site, "Our Scientific and Medical Advisory Board." We noticed that the webpage also said " Grants Program Funding Opportunities." It also said " Connect with Us Researchers, Clinicians, Professionals. Workplace Giving and Matching Gifts. March is NBIA Awareness Month. Join the NBIA Alliance in declaring March NBIA Awareness Month around the world! The grants were made possible by ." The header had Neurodegeneration with Brain Iron Accumulation as the highest ranking optimized keyword. It is followed by NBIA, PKAN, and pantothenate kinase-associated neurodegeneration which isn't as ranked as highly as Neurodegeneration with Brain Iron Accumulation. The next words nbiadisorders.org used was PLAN. PLA2G6-Associated Neurodegeneration was included but will not be viewed by web engines.

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